New Concept model for Dementia

[SnorreFossland]

Propose a new Concept model for Dementia treatment with Why, Who, How, What and (When)

[SnorreFossland]

Input from Jorgen

Why?:

Here are some of the primary purposes or reasons for conducting research into dementia:

Understanding the Underlying Causes
Early Detection and Diagnosis
Treatment Development
Prevention Strategies
Quality of Life
Caregiver Support
Public Health Impact
Ethical Considerations
Global Health Challenge
Innovation Scientific Knowledge
Technology
Personalized Medicine and Treatment

Who?:

Neurologists and Geriatricians
Neuropsychologists
Clinical Researchers
Neuroscientists
Epidemiologists
Geneticists
Imaging Specialists
Pathologists
Nurses and Caregivers
Social Workers
Occupational Therapists and Speech Therapists
Pharmacologists
Ethicists and Ethics Committees
Advocacy Organizations
Researchers
Healthcare Professionals
Advocacy Groups:
Pharmaceutical and Biotechnology Companies
Government and Policymakers
Funders and Granting Agencies
Academic Institutions
Long-Term Care Facilities
Community Organizations
Neuroimaging and Diagnostic Facilities
Legal and Advocacy Professionals
Technology and Software Developers
Media and Journalists
International Organizations

What?:

Clinical History and Symptoms
Medical History
Neuropsychological Assessment
Neuroimaging Data
Biomarkers
Genetic Information
Lifestyle Factors
Environmental Exposures
Cerebrospinal Fluid Analysis
Clinical Trials Data
Longitudinal Studies
Patient and Caregiver Perspectives
Epidemiological Data
Ethical Considerations
Cross-Disciplinary Collaboration:

How?:

Dementia Research Tasks:

Literature Review
Hypothesis Generation
Study Design
Data Collection
Data Analysis
Biomarker Analysis
Genetic Analysis
Neuroimaging Analysis
Clinical Trials
Ethical Considerations
Interdisciplinary Collaboration
Dementia Diagnosis Tasks:

Clinical Assessment
Medical History Review
Neuropsychological Testing:
Neuroimaging Interpretation
Biomarker Assessment
Genetic Counseling
Differential Diagnosis
Ethical Discussions
Communication with Patients and Families
Long-Term Monitoring
Collaboration with Care Teams
Additionally, common perspectives:

Research Importance and Progress
Ethical Considerations
Patient-Centered Approach
Awareness and Stigma Reduction
Interdisciplinary Collaboration
Access to Diagnostics and Care
Research Funding and Investment
Innovation and Technology
End-of-Life Care and Advance Directives
Global Perspective
Processes and Project Management functions to be instantiated:

Define Clear Objectives
Assemble a Multidisciplinary Team
Secure Funding & Funding Acquisition
Ethical Considerations
Literature Review
Research Planning and Design
Study Design
Data Collection
Collaboration and Data Sharing
Patient and Caregiver Engagement
Technology and Innovation
Clinical Trials
Data Analysis
Translation to Practice
Policy Advocacy
Public Engagement and Awareness
Long-Term Monitoring, Follow-Up &Feedback Loop
Continued Education
Global Collaboration
Evaluation and Quality Improvement
Multidisciplinary Collaboration
Study Design and Protocols
Data Collection and Analysis