Should we all make NCPI Person Public? What about NCPI Participant?

[mingward]

https://nih-ncpi.github.io/ncpi-fhir-ig-2/module_overview.html

What are folks' thoughts on making NCPI Person resource public while keeping NCPI Study Participant Private (aka require authorized access)? dbGaP have all de-identified IDs. What about NCPI Participants? Thanks!

This Issue does not block the voting on NCPI Participant Module. But, we are interested to see how others think about this.

[RobertJCarroll]

Overall, we haven't really discussed what resources WILL be made publicly available. The policy impetus from dbGaP would permit both NCPI Person and NCPI Study Participant Public, as those are available in / derivable from the SSTR. NCPI Participant would generally be "controlled access" as it has row-level participant information that may not be publicly available.

I do acknowledge that dbGaP makes some row-level participant data publicly available (eg, sex); it's worth digging into this some more.